

Blown tire aside, the last few weeks have truly been amazing. What a change, to suddenly be living at home again and not always preparing for the next trip to the city! And what a change, to be allowed to take Tristan out in public, to places where there are other kids, even indoors!
We’ve wholeheartedly thrown ourselves into this new phase, with Tristan frequently saying, “We can do this because I’m IN MAINTENANCE now!!” He’s been to playgrounds and to baseball games and to the Discovery Museum and to restaurants. Best of all, he and Phoebe are now taking karate classes. Phoebe says “HA!”so superbly when she kicks the big foam pad held by an instructor, her pony tails flying as her foot lands, and Tristan listens so carefully, with such focus, to the huge shaven-headed black-belted man who tells him how to do an upward block or a side kick. The littlest one on the mats, he has an intense look of joy on his face running in circles with the other kids to warm up. The master tells the other kids to watch out for the little one between shouting instructions to them to leap up or hit the ground between sprints. Tristan is fully, with all his soul, loving being allowed to do these new things and feeling good enough to want to. And I sit, all the while, watching him with a dumb grin on my face. What a relief to be here and now, and thank goodness the last seven months are behind us.
I’ve been running a lot, sometimes with Kneeland friends, sometimes with the stroller, sometimes alone or with Otis the dog. It’s only two weeks until the half marathon at the Avenue of the Giants. Team Kneeland is only just short of meeting its fundraising target for the Leukemia & Lymphoma Society (see http://pages.teamintraining.org/gba/yourway16/agorog), and I’m just short of the 13.1 mile race distance — on Saturday Otis and I ran 13 miles, up over Kneeland and a few miles down the other side of the mountain. Gary heroically watched the kids while I ran, and it’s debatable who was more tired afterward. I’m not saying I wasn’t tired. I was wrecked afterward. But there’s something about kids on Spring Break. They’re a triple handful.
This coming Monday the 18th Tristan and I will head down to San Francisco for his second appointment of Maintenance. He’ll have chemo on Tuesday. I’m finding myself sort of…resentful, I guess, about having to go back again. I don’t want to go anymore. I keep having flashes of memories from those seven months, July to March, and feeling real horror. Shuddering. Trying to shut out flashes of really awful moments. The thought of going again…it’ll make it all fresh again. I know, I know, this is SO not over yet, and how could I let myself start feeling that?! Easy. The big target was getting to Maintenance. We did that, and now I guess I’m in the process of making the emotional adjustment to the new target, which is 2.5 years down the line. And then, I’ll go through this again, and the next target will be five years down the line from the previous one. Five years is the magic number. If these leukemia kids don’t relapse within five years of finishing treatment, they are declared free and clear. Not sure exactly what that means. A lower level of anxiety, I guess. So, now, Maintenance. Less scary, less intense, but not over yet. I’ll figure it out and settle into a new groove, I’m sure.
Ay! Your beautiful boy…he looks so grown up, and radiant and unstoppable!! Love seeing this.
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Happy hearts!! Thanks for the update on your super boy and his two awesome sidekicks. Miss your family and looking forward to seeing you all soon! Big xoxox’s!
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